Retrospective Assessment of Oncology Treatment Decisions by Patients with Advanced Thoracic or Gastrointestinal Malignancies
The purpose of this study is to determine how you feel about having taken chemotherapy. Individuals with cancer are often presented with a bewildering array of treatment options. They are expected to make an informed decision about something entirely new to them which can have a profound effect on quality of life and life expectancy. We wish to use your feedback about your treatment experience to help future patients decide what is best for them. We hope this study will provide insight into ways the cancer care healthcare providers can better assist future patients who are newly diagnosed with cancer make the best treatment decisions for themselves.
Primary outcome is the score on the FACT-TS-G scale of treatment satisfaction. The FACT-TS-G (Functional Assessment of Cancer Therapy - Treatment Satisfaction - General) instrument will be used to assess overall treatment satisfaction. In addition, and open-format questionnaire will be adminsitered.
Patients with advanced malignancies are often presented with a bewildering array of systemic treatment options. They are expected to make an informed decision about something entirely new to them. In order to help them make the best decision, currently, evidence and data from clinical trials is presented. However, it is debatable whether participant's in cilinical trials find themselves in a similar situation as patients treated off-study, as participation in a trial carries with it the perception that regardless of what happens during treatment, future generations will benefit from one's experience. This convicition may make any experience on a clinical trial meaningful to some degree. For patients choosing standard therapy, the goal is entirely personal and individual - to make the best decision one can in order to match treatment strategy to one's outlook and one's life priorities.
The treatment choices made by cancer patients have a profound effect on patients' quality of life and potentially life expectancy, affecting what a patient is or is not able to do in the lifespan remaining. Future research is thought to be needed to understand how oncology patients can be enabled to make the decision that is right for them, and a decision that has a low likelihood of leading to regret.
Print this page and take it to your doctor to discuss your eligibilty and treatment options. Only your doctor can refer you to a clinical trial.
These resources are provided in partnership with the
Canadian Cancer Society